Patient Voices: Lupus MUST READ

The New York Times has a really great article about a diverse group of patients all with Lupus that has the actual people tell their story. There is a 16 year old girl, a man (whom are strongly misrepresented when talking about Lupus), and there are different ethnicities all with compelling stories.

Click the link in the following article from the American Lupus Foundation to go to the site.

The New York Times website Patient Voices Series Features People Affected by Lupus
July 9, 2009

"As part of its Patient Voices series, The New York Times website is featuring the stories of people from across the country who are affected by lupus. Using audio interviews and photos, Patient Voices seeks to give a glimpse into the life of someone living with lupus. The individuals featured are as diverse as the disease itself, and include actress/model and Lupus Foundation of America (LFA) national spokesperson Tomiko Fraser Hines, who lost her sister to lupus, and Jeremy Margolis, who recently suffered a heart attack resulting from lupus complications.The LFA would like to thank the participants for having the courage to share their stories, and believes they will not only help raise awareness of lupus, but will educate the public about a disease that is often misunderstood and under recognized . The LFA would also like to extend its gratitude to The New York Times for helping to increase awareness of lupus, an unpredictable and potentially fatal disease that affects an estimated 1.5 million Americans and at least five million people worldwide."

Visit The New York Times website and listen to the interviews and view the pictures.